Don't Go The Journey Alone!

 

Are you frustrated for you or your child with being treated for symptom after symptom without relief? Fed up with no diagnosis or a misdiagnosis? Overwhelmed without finding answers?

I have spent over 15 years working  in BioPharma alongside patients with rare diseases. I understand the frustration and struggles of not only getting a diagnosis and treatment, but in the struggles of  everyday life.  As an Independent Professional Health Advocate  I have the experience, time and connections to partner with you.

How I can help

Depending on the services you need, I will conduct research and make connections on your behalf.

These activities may include:

· Assisting in locating a Health Care Professional for diagnosis and/ or treatment

· Uncovering FDA approved  treatments, or not yet approved treatments being studied in on-going or planned clinical trials 

· Connecting  you with advocacy groups and/or patient support groups

· Navigating medical insurance issues

· Assisting in school/work issues related to you or your child’s illness

  

30 million people in the United States are living with rare diseases, that equates to 1 in every 10 Americans.  If this is you or someone you love, contact me. I want to help you along your journey.